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Chesterfield family address influential audience about the importance of children’s organ donation

This week, the Binghams, a local family from Newbold, where invited to Parliament by their local MP Toby Perkins to politicians, charity organisers and NHS policy makers about the importance of children’s organ donation.

Freya Bingham, 5 from Newbold, was born with a rare heart condition and required a transplant.  Due to a shortage of registered donors her family faced an agonising two month wait whilst a suitable donor was found.  Fortunately, following a successful transplant, Freya is on the mend and able to live a fulfilling life.

TP + Binghams

1 in every 133 children in the UK is born with a similar heart condition.  Like Freya, many of these young people can live a happy life if they are able to get a transplant.

But unfortunately, due to lack of awareness, there is a shortage of children on the donor register and far too many kids born with heart conditions die unnecessarily.

 

So her parents, Mr and Mrs Bingham, are concerned that many other children will not be as lucky.  They have therefore joined up with local MP, Toby Perkins to raise awareness of the problem.

Toby has already arranged a drop-in information session for MPs in Westminster and this week followed it up with a high profile reception which was attend by MPs of all parties including former health secretaries.

He said: “After meeting the Binghams, and hearing how important a transplant was for their daughter, I was determined to do what I can to raise awareness about this important issue. 

TP signing“It was fantastic that the Binghams were able to speak directly to so many influential politicians and policy makers.  I’m sure their presentation will have made a real impact amongst those present.”

Mr Perkins organised the event in conjunction with the Children’s Heart Federation (CHF), a charity have been the UK’s leading children’s heart charity for a the last 25 years, playing a vital role in offering care and support for families as well as leading research into the main causes and cures of congenital heart disease.

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Welcome

I am Toby Perkins, Labour's Member of Parliament for Chesterfield. If you would like to get in touch with me, my office is open and can be reached by phone on 01246 386 286. I also hold regular surgeries so that constituents can meet me and I can take up their concerns. If you would like to make an appointment then please do contact my office. Thank you for visiting.

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Tel: 01246 386286
Email: toby.perkins.mp@parliament.uk
Post: 113 Saltergate, Chesterfield, S40 1NF

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